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Olga Batiounina secures a face mask to her daughter Sandra Massart, 10, while Sandra's father William Massart, right, records some stories for his daughter to listen to, at the family's apartment in Durham, NC, USA, on Tuesday, Feb. 14, 2012.  Sandra Massart is being treated at Duke University Hospital in Durham, NC, for MLD, a degenerative condition.  Photo by Ted Richardson